Panel on Confidentiality Issues Arising from the Integration of Remotely Sensed and Self-Identifying Data's Books

Putting People on the Map

Protecting Confidentiality with Linked Social-Spatial Data

By: National Research Council,Division of Behavioral and Social Sciences and Education,Committee on the Human Dimensions of Global Change,Panel on Confidentiality Issues Arising from the Integration of Remotely Sensed and Self-Identifying Data

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Putting People on the Map

Protecting Confidentiality with Linked Social-Spatial Data

Precise, accurate spatial information linked to social and behavioral data is revolutionizing social science by opening new questions for investigation and improving understanding of human behavior in its environmental context. At the same time, precise spatial data make it more likely that individuals can be identified, breaching the promise of confidentiality made when the data were collected. Because norms of science and government agencies favor open access to all scientific data, the tension between the benefits of open access and the risks associated with potential breach of confidentiality pose significant challenges to researchers, research sponsors, scientific institutions, and data archivists. Putting People on the Map finds that several technical approaches for making data available while limiting risk have potential, but none is adequate on its own or in combination. This book offers recommendations for education, training, research, and practice to researchers, professional societies, federal agencies, institutional review boards, and data stewards.

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Page Count

176

Publisher

National Academies Press

Published Date

ISBN 10

0309185572

ISBN 13

9780309185578

Conducting Biosocial Surveys

Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata

By: National Research Council,Division of Behavioral and Social Sciences and Education,Committee on Population,Committee on National Statistics,Panel on Collecting, Storing, Accessing, and Protecting Biological Specimens and Biodata in Social Surveys

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Conducting Biosocial Surveys

Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata

Recent years have seen a growing tendency for social scientists to collect biological specimens such as blood, urine, and saliva as part of large-scale household surveys. By combining biological and social data, scientists are opening up new fields of inquiry and are able for the first time to address many new questions and connections. But including biospecimens in social surveys also adds a great deal of complexity and cost to the investigator's task. Along with the usual concerns about informed consent, privacy issues, and the best ways to collect, store, and share data, researchers now face a variety of issues that are much less familiar or that appear in a new light. In particular, collecting and storing human biological materials for use in social science research raises additional legal, ethical, and social issues, as well as practical issues related to the storage, retrieval, and sharing of data. For example, acquiring biological data and linking them to social science databases requires a more complex informed consent process, the development of a biorepository, the establishment of data sharing policies, and the creation of a process for deciding how the data are going to be shared and used for secondary analysis-all of which add cost to a survey and require additional time and attention from the investigators. These issues also are likely to be unfamiliar to social scientists who have not worked with biological specimens in the past. Adding to the attraction of collecting biospecimens but also to the complexity of sharing and protecting the data is the fact that this is an era of incredibly rapid gains in our understanding of complex biological and physiological phenomena. Thus the tradeoffs between the risks and opportunities of expanding access to research data are constantly changing. Conducting Biosocial Surveys offers findings and recommendations concerning the best approaches to the collection, storage, use, and sharing of biospecimens gathered in social science surveys and the digital representations of biological data derived therefrom. It is aimed at researchers interested in carrying out such surveys, their institutions, and their funding agencies.

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Page Count

124

Publisher

National Academies Press

Published Date

ISBN 10

0309157064

ISBN 13

9780309157063

Reengineering the Survey of Income and Program Participation

By: National Research Council,Division of Behavioral and Social Sciences and Education,Committee on National Statistics,Panel on the Census Bureau's Reengineered Survey of Income and Program Participation

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Reengineering the Survey of Income and Program Participation

Beginning in 2006, the Census Bureau embarked on a program to reengineer the Survey of Income and Program Participation (SIPP) to reduce its costs and improve data quality and timeliness. The Bureau also requested the National Academies to consider the advantages and disadvantages of strategies for linking administrative records and survey data, taking account of the accessibility of relevant administrative records, the operational feasibility of linking, the quality and usefulness of the linked data, and the ability to provide access to the linked data while protecting the confidentiality of individual respondents. In response, this volume first examines the history of SIPP and reviews the survey's purpose, value, strengths, and weaknesses. The book examines alternative uses of administrative records in a reengineered SIPP and, finally, considers innovations in SIPP design and data collection, including the proposed use of annual interviews with an event history calendar.

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Page Count

188

Publisher

National Academies Press

Published Date

ISBN 10

0309141737

ISBN 13

9780309141734

Putting People on the Map

Protecting Confidentiality with Linked Social-Spatial Data

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Putting People on the Map

Protecting Confidentiality with Linked Social-Spatial Data

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Page Count

177

Publisher

National Academies Press

Published Date

ISBN 10

0309104149

ISBN 13

9780309104142

Book's by Panel on Confidentiality Issues Arising from the Integration of Remotely Sensed and Self-Identifying Data

Putting People on the Map

Putting People on the Map

Conducting Biosocial Surveys

Conducting Biosocial Surveys

Reengineering the Survey of Income and Program Participation

Reengineering the Survey of Income and Program Participation

Putting People on the Map

Putting People on the Map

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