The experiences of the families rang true throughout. I have experienced many of these personally. ...It made me think differently about my personal experience as a parent of a child with cancer and my son's current social experiences." Macmillan Cancer Support This book offers a radical critique of existing psychosocial research on children’s experiences of cancer and proposes an alternative view informed by recent interpretive perspectives. Exploring topics from obtaining a diagnosis of childhood cancer through to sharing decision-making and communication, it reviews a wide-ranging body of research and theory on childhood, chronic illness, and cancer. The book also examines research that has focused on how parents and other family members experience childhood illness. Written by a sociologist, a psychologist and a practising paediatric oncologist, this book is unique in its approach and provides key reading across traditional disciplinary boundaries. In particular, the book highlights the emerging contribution of interpretive work to understanding chronic childhood illness and further develops the dialogue that has only recently emerged between the sociology of illness and the sociology of childhood. Rethinking Experiences of Childhood Cancer is aimed at researchers, students and practitioners in the fields of social science, childhood studies, nursing, medicine, mental health care, social work, clinical psychology and other professions allied to medicine, and will also be of interest to families who have been affected by childhood cancer.
Collaboration-based approaches to healthcare improvement attract much attention. They involve networks of people coming together to cooperate around a common interest, with shared goals of improving care and mutual learning. Longstanding examples of collaborative approaches have been associated with some success in improving outcomes and reducing harm. The evidence for their effectiveness and cost-effectiveness, however, remains inconsistent and contingent on the circumstances in which they are deployed and how they are used for what purpose. Several models for collaboration have been developed, varying in structure, format, and balance between internal leadership and external control. The authors focus on two approaches: quality improvement collaboratives and communities of practice. They explore evidence of their impact on health outcomes, and evidence about how best to organise and implement collaboration-based approaches. Using examples of more and less successful collaborations, they offer guidance on the key challenges involved in using collaboration-based approaches to improve healthcare. This title is also available as Open Access on Cambridge Core.
For nearly ten years, the Health Foundation has been working with the NHS to deliver improvement through service and staff development programmes. In a unique contribution to advancing the field of improvement, the Health Foundation has ensured that each of our improvement programmes is evaluated. We evaluate our programmes to provide sound evidence of their impact, and to better understand how it has been achieved. The researchers organised their analysis within three broad themes: - design and planning - organisational and institutional contexts, professions and leadership - sustainability, spread and unintended consequences. Within these themes, they identified 10 key challenges to improvement that consistently emerged in the programmes evaluated: - convincing people that there is a problem - convincing people that the solution chosen is the right one - getting data collection and monitoring systems right - excess ambitions and projectness - the organisational con ...
Within an expanding field of study in both undergraduate and graduate nursing curricula, this Third Edition explores vulnerability from the perspective of individuals, groups, communities, and populations while addressing how vulnerability affects nurses, nursing, and nursing care. This new edition presents a basic structure for caring for the vulnerable with the ultimate goal of providing culturally competent care. Theoretical and research chapters progress towards others offering meaningful learning experiences for both nursing students and practitioners. Further, since nurses are the crucial link between those who are vulnerable and those with access to solutions, this text provides ideas for how nurses might advocate for the vulnerable on a policy level. Written specifically for nurses by nurses, this Third Edition is a timely and necessary response to the culturally diverse, vulnerable populations for whom nurses must provide appropriate and precise care.
This book fills an important niche in the market providing practical expert advice on the involvement of service users - patients, carers and the public - in nursing and healthcare research. An invaluable guide for anyone working or involved in nursing and healthcare research, this book provides a step-by-step guide to the principles and process of involvement, including understanding the rationale for involvement, designing involvement, working with service users, and evaluating what has been achieved. With illustrations, worked examples and tool sheets throughout, this evidence-based guide uses real life examples from recent research studies in health and social care research, thus relating theory to practice in a meaningful way. The Handbook of Service User Involvement in Nursing & Healthcare Research introduces a wide range of key issues, including: Why? Why should researchers involve service users? How? How can researchers and service users work together successfully and productively? Who? Who chooses to become involved in research? How are issues of representation and diversity addressed? When? At what stage should service users be involved in the research process?
This book provides a comprehensive and contemporary exploration of a wide range of topics within the social aspects of health, illness and healthcare. It explores and explains the different relationships between social categories and health, different experiences of illness and the role of the healthcare provider in society." --rear cover.
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