The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD. Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.
Sociologist Maria Kefalas travels to one of Chicago's last remaining working-class "white" neighborhoods to consider the significance of home, community and nation a generation after Martin Luther King's supporters marched through the streets, demanding an end to segregation, .
Leukodystrophy is a life-limiting neurological disorder that can affect both children and adults. In an illustrated story based on her conversations with her children after their sister, Cal, was diagnosed with leukodystrophy, Maria Kefalas delivers a simple and powerful explanation from a child’s point of view that explains the workings of the brain, what a diagnosis means, and how to face the challenge as a family. “This is a beautiful book that delivers a powerfully simple, no nonsense explanation of leukodystrophy ... it reminds us that every single child needs and responds to our love and kindness.” —Rebecca Brenner, former teacher
This book is for families, patients, medical professionals and the patient advocacy community. It discusses the history and science of gene therapy in a manner young children can understand.
Two sociologists reveal how small towns in Middle America are exporting their most precious resource—young people—and share what can be done to save these dwindling communities In 2001, with funding from the MacArthur Foundation, sociologists Patrick J. Carr and Maria J. Kefalas moved to Iowa to understand the rural brain drain and the exodus of young people from America’s countryside. They met and followed working-class “stayers”; ambitious and college-bound “achievers”; “seekers,” who head off to war to see what the world beyond offers; and “returners,” who eventually circle back to their hometowns. What surprised them most was that adults in the community were playing a pivotal part in the town’s decline by pushing the best and brightest young people to leave. In a timely, new afterword, Carr and Kefalas address the question “so what can be done to save our communities?” They profile the efforts of dedicated community leaders actively resisting the hollowing out of Middle America. These individuals have creatively engaged small town youth—stayers and returners, seekers and achievers—and have implemented a variety of programs to combat the rural brain drain. These stories of civic engagement will certainly inspire and encourage readers struggling to defend their communities.
Watch the book trailer for Hollowing Out the Middle In 2001, with funding from the MacArthur Foundation, sociologists Patrick J. Carr and Maria J. Kefalas moved to Iowa to understand the rural brain drain and the exodus of young people from America’s countryside. Articles and books—notably Richard Florida’s The Rise of the Creative Class—celebrate the migration of highly productive and creative workers to key cities. But what happens to the towns that they desert, and to the people who are left behind? To answer that question, Carr and Kefalas moved to "Ellis," a small town of two thousand. Ellis is typical of many places struggling to survive, and Iowa is typical of many states in the Heartland, aging rapidly. One reason is that many small towns simply aren’t regenerating, but another is that its educated young people are leaving in droves. In Ellis, Carr and Kefalas met the working-class "stayers," trying to survive in the region’s dying agro-industrial economy; the high-achieving and college-bound "achievers," who often leave for good; the "seekers" who head off to war to see what the world beyond offers; and the "returners," who eventually circle back to their hometowns. What surprised Carr and Kefalas most, was that adults in the community were playing a pivotal part in the town’s decline by pushing the best and brightest young people to leave, and by underinvesting in those who choose to stay—even though these young people are their best chance for a future. The emptying out of small towns is a national concern, but there are strategies for arresting the process and creating sustainable, thriving communities. Hollowing Out the Middle is a wake-up call we cannot afford to ignore—not only because sixty million Americans still live in rural communities and small towns, but because our nation’s economic health and future is tied to the Heartland.
Sociologist Maria Kefalas travels to one of Chicago's last remaining working-class "white" neighborhoods to consider the significance of home, community and nation a generation after Martin Luther King's supporters marched through the streets, demanding an end to segregation, .
Millie Acevedo bore her first child before the age of 16 and dropped out of high school to care for her newborn. Now 27, she is the unmarried mother of three and is raising her kids in one of Philadelphia's poorest neighborhoods. Would she and her children be better off if she had waited to have them and had married their father first? Why do so many poor American youth like Millie continue to have children before they can afford to take care of them? Over a span of five years, sociologists Kathryn Edin and Maria Kefalas talked in-depth with 162 low-income single moms like Millie to learn how they think about marriage and family. Promises I Can Keep offers an intimate look at what marriage and motherhood mean to these women and provides the most extensive on-the-ground study to date of why they put children before marriage despite the daunting challenges they know lie ahead.
Leukodystrophy is a life-limiting neurological disorder that can affect both children and adults. In an illustrated story based on her conversations with her children after their sister, Cal, was diagnosed with leukodystrophy, Maria Kefalas delivers a simple and powerful explanation from a child’s point of view that explains the workings of the brain, what a diagnosis means, and how to face the challenge as a family. “This is a beautiful book that delivers a powerfully simple, no nonsense explanation of leukodystrophy ... it reminds us that every single child needs and responds to our love and kindness.” —Rebecca Brenner, former teacher
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD. Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.
Two sociologists reveal how small towns in Middle America are exporting their most precious resource—young people—and share what can be done to save these dwindling communities In 2001, with funding from the MacArthur Foundation, sociologists Patrick J. Carr and Maria J. Kefalas moved to Iowa to understand the rural brain drain and the exodus of young people from America’s countryside. They met and followed working-class “stayers”; ambitious and college-bound “achievers”; “seekers,” who head off to war to see what the world beyond offers; and “returners,” who eventually circle back to their hometowns. What surprised them most was that adults in the community were playing a pivotal part in the town’s decline by pushing the best and brightest young people to leave. In a timely, new afterword, Carr and Kefalas address the question “so what can be done to save our communities?” They profile the efforts of dedicated community leaders actively resisting the hollowing out of Middle America. These individuals have creatively engaged small town youth—stayers and returners, seekers and achievers—and have implemented a variety of programs to combat the rural brain drain. These stories of civic engagement will certainly inspire and encourage readers struggling to defend their communities.
Have you ever wondered what makes the Mediterranean diet so healthy? Do you enjoy olives, tomatoes, Chouriço and Mozzarella, basil, rosemary and oregano, grapes, figs, and dates; and would you like to learn more about the substances they contain? Then this book is for you! The Mediterranean diet, designated as an ‘Intangible Cultural Heritage of Humanity’, has a reputation of being particularly beneficial to your health and for reducing the risk of diseases like cardiovascular disorders. Read this book to find out which chemical compounds contribute to these health benefits. Typical ingredients of the Mediterranean diet include olive oils, fresh and dried vegetables and fruits, cereals, moderate amounts of fish, dairy and meat, and various condiments and spices, typically accompanied by wine and infusions. The book will introduce you to the most typical ingredients, providing information about their use in Mediterranean cuisine and explaining more about the healthy substances they contain – from their chemistry to their occurrence in the foods and the resulting intake. Summarizing important facts and data from available scientific literature, this book even gives recommendations for guidelines to a healthy diet – guidelines that are becoming more and more important. In recent years, it has been observed that nutritional habits in the geographical area have started to deviate further and further away from the typical Mediterranean nutritional pattern, representing an alarming trend that this book also critically addresses, since the WHO has reported increases in obesity and malnutrition in the Mediterranean area. Illustrations of important chemical compound structures, as well as appetizing photos of select ingredients for Mediterranean dishes, accompany the text.
Presents an in-depth look at American women and families around transformational moments in history, with new data and commentary on the current status of women in America.
Consumers are more and more concerned with the health of the food they eat. While great public anxiety about genetically engineered foodstuffs and BSE in cattle has developed in Europe, on the positive side there has been a rapidly rising demand for organic produce. Food retailers, including supermarkets, have responded, and the organic sector has moved from a being marginal production fad to a serious subject of policy concern for politicians and public servants involved in European agricultural policy. In this book, three leading authorities on organic farming have for the first time produced a serious and scientific overview for the lay person of the state of organic farming and policy towards it in Europe. Based on a review of a huge body of scientific research into all aspects of the sector, the authors provide in accessible terms a balanced, up-to-date and policy relevant overview of: · The position of organic farming today - the size of the sector, its markets, where research is conducted, and current policies towards the sector. · Assessment of its possible contributions to the environment, food quality, farmers' incomes, and rural development generally. · Explanation of the key factors that will impinge on the organic farming sector in future and policy towards it as a result of the enlargement of the EU, ongoing negotiations at the World Trade Organisation, and Agenda 2000. · Detailed recommendations for future organic farming policy. Most people recognise that European agricultural policy has to change, involving further fundamental reform of the Common Agricultural Policy. This unique book will be of immense value to all those concerned with the issue, as well as of intense interest to those actually involved in the organic farming sector. Educationalists in agricultural universities and institutes will find the book a useful teaching tool.
This book is for families, patients, medical professionals and the patient advocacy community. It discusses the history and science of gene therapy in a manner young children can understand.
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