Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians is a practical reference for clinicians caring for ALS patients that brings together the collective wisdom of those at the forefront of patient-oriented research and practice. The book compiles recent findings of both evidence-based and experience-based research to provide clinicians with tools that improve quality and length of life for people with ALS. To present a truly multidisciplinary approach to ALS, this book mirrors the organization of a large clinic with separate departments working collaboratively. It begins with a review of current understandings of ALS including diagnostic criteria, genetic and sporadic subtypes, epidemiology, co-morbidities, and prognosis. From there the book is divided into chapters that include neurological assessment, nursing care and coordination, speech and swallowing interventions, nutrition and nutrition therapy, physical therapy, occupational therapy, respiratory therapy, assistive technology, social work practice related to ALS, and web-based resources. Each chapter is led by experts from that discipline who review evidence- and experience-based care options. In addition, the entire North American ALS Research Group (ALSRG) has had a chance to weigh in as well, making this a unique and well-rounded resource. The book addresses everything from breaking the news of an ALS diagnosis to end-of-life care and bereavement. By putting experts in conversation with each other, both within and across individual disciplines, Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians provides comprehensive, real-world care information that canít be found anywhere else. Amyotrophic Lateral Sclerosis features: A practical reference for all members of the ALS care team, covering everything frombreaking the news to end-of-life care and bereavement Chapters that mirror the organization of large multi-disciplinary ALS clinics andinclude pertinent information for each member of the care team Evidence- and experience-based findings provide current scientific and clinical consensus and a forum for real-world care options
ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.
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