Committee on Ethical Issues in Housing-Related Health Hazard Research Involving Children, Youth, and Families's Books

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

By: Institute of Medicine,National Research Council,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Ethical Issues in Housing-Related Health Hazard Research Involving Children, Youth, and Families

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Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.

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Page Count

216

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National Academies Press

Published Date

ISBN 10

0309164923

ISBN 13

9780309164924

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

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Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

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217

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National Academies Press

Published Date

ISBN 10

0309097266

ISBN 13

9780309097260

Ethical Conduct of Clinical Research Involving Children

By: Institute of Medicine,Board on Health Sciences Policy,Committee on Clinical Research Involving Children

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Ethical Conduct of Clinical Research Involving Children

By: Institute of Medicine,Board on Health Sciences Policy,Committee on Clinical Research Involving Children

In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.

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445

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National Academies Press

Published Date

ISBN 10

0309133386

ISBN 13

9780309133388

Ethical Considerations for Research Involving Prisoners

By: Committee on Ethical Considerations for Revisions to DHHS Regulations for Protection of Prisoners Involved in Research,Board on Health Sciences Policy,Institute of Medicine

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Ethical Considerations for Research Involving Prisoners

By: Committee on Ethical Considerations for Revisions to DHHS Regulations for Protection of Prisoners Involved in Research,Board on Health Sciences Policy,Institute of Medicine

In the past 30 years, the population of prisoners in the United States has expanded almost 5-fold, correctional facilities are increasingly overcrowded, and more of the country's disadvantaged populations—racial minorities, women, people with mental illness, and people with communicable diseases such as HIV/AIDS, hepatitis C, and tuberculosis—are under correctional supervision. Because prisoners face restrictions on liberty and autonomy, have limited privacy, and often receive inadequate health care, they require specific protections when involved in research, particularly in today's correctional settings. Given these issues, the Department of Health and Human Services' Office for Human Research Protections commissioned the Institute of Medicine to review the ethical considerations regarding research involving prisoners. The resulting analysis contained in this book, Ethical Considerations for Research Involving Prisoners, emphasizes five broad actions to provide prisoners involved in research with critically important protections: • expand the definition of "prisoner"; • ensure universally and consistently applied standards of protection; • shift from a category-based to a risk-benefit approach to research review; • update the ethical framework to include collaborative responsibility; and • enhance systematic oversight of research involving prisoners.

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284

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National Academies Press

Published Date

ISBN 10

0309164605

ISBN 13

9780309164603

Book's by Committee on Ethical Issues in Housing-Related Health Hazard Research Involving Children, Youth, and Families

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

Ethical Conduct of Clinical Research Involving Children

Ethical Conduct of Clinical Research Involving Children

Ethical Considerations for Research Involving Prisoners

Ethical Considerations for Research Involving Prisoners

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