Brenda Currey Lewis was a typical, active child. But when she was seven years old her life changed dramatically. Generalized dystonia (dystonia musculorum deformans) turned her muscles against her. This rare neurological movement disorder causes muscle groups to tug and twist the body into abnormal postures. Brenda started walking on the outer edge of her right foot, and within a year she was wheelchair bound. The symptoms gradually spread through most of her body. For almost forty years Brenda has experienced uncontrollable muscle movements that have wreaked havoc in her body, but not her spirit. This is a story of resilience in the face of a little-known, confusing, and debilitating condition. The author takes you on a journey from skating rinks to surgical suites, from bicycles to wheelchairs, from doubt to determination. Brenda’s quirky sense of humour makes this candid account of life with dystonia a thought-provoking and an entertaining read.
Brenda Currey Lewis was a typical, active child. But when she was seven years old her life changed dramatically. Generalized dystonia (dystonia musculorum deformans) turned her muscles against her. This rare neurological movement disorder causes muscle groups to tug and twist the body into abnormal postures. Brenda started walking on the outer edge of her right foot, and within a year she was wheelchair bound. The symptoms gradually spread through most of her body. For almost forty years Brenda has experienced uncontrollable muscle movements that have wreaked havoc in her body, but not her spirit. This is a story of resilience in the face of a little-known, confusing, and debilitating condition. The author takes you on a journey from skating rinks to surgical suites, from bicycles to wheelchairs, from doubt to determination. Brenda’s quirky sense of humour makes this candid account of life with dystonia a thought-provoking and an entertaining read.
In Waste Works, Brenda Chalfin examines Ghana’s planned city of Tema, theorizing about the formative role of waste infrastructure in urban politics and public life. Chalfin argues that at Tema’s midcentury founding, a prime objective of governing authorities was to cultivate self-contained citizens by means of tightly orchestrated domestic infrastructure and centralized control of bodily excrement to both develop and depoliticize the new nation. Comparing infrastructural innovations across the city, Chalfin excavates how Tema residents pursue novel approaches to urban waste and sanitation built on the ruins of the inherited order, profoundly altering the urban public sphere. Once decreed a private matter to be guaranteed by state authorities, excrement becomes a public issue, collectively managed by private persons. Pushing self-care into public space and extending domestic responsibility for public well-being and bodily outputs, popularly devised waste infrastructures are a decisive arena to make claims, build coalitions, and cultivate status. Confounding high-modernist ideals, excremental infrastructures unlock bodily waste’s diverse political potentials.
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